Tuesday, October 5, 2010

My Heart

To date, Tommy has given me three heart attacks. The first was when I was 15 weeks pregnant and started bleeding. I didn't know him yet, but I couldn't imagine life without him. The second was, of course, the night he was born. Beautiful and amazing as that was, it was also scary.

Last night was heart attack number three. It's really hard for me to type this and I struggled with whether or not to share this, because there are some things that you just don't want to say. And yet, there are also some things that you need to say, but I also want to say that we have the best care and have tests scheduled and someday, I am going to ground him SO HARD for scaring me.

Last night after dinner, Tommy had a seizure. I didn't know it was a seizure until he clamped down on my finger so hard that I didn't know how I was going to get it out of his mouth. We thought he was choking because he fell on the floor and his eyes were closed and his lips were blue and his little body was so stiff. I was holding him and I've never been more scared in my life, but we had the best 911 dispatcher ever (seriously, we owe our lives to these people) who talked us through it and helped me realize that he was breathing and confirmed that it sounded like a seizure when I said I thought that he was having a seizure. He opened his eyes finally but wouldn't look at me or couldn't look at me and then the first responder arrived and said, "I was here the night he was born!"
Really. He said that. I wanted to hug him for knowing just what to say. As if wanting to see someone who'd seen him as a newborn, Tommy opened his eyes and focused and he was still SO PALE but he was responding to us. Then the police cars and the firemen started arriving and I kept thinking, Gosh, the neighbors must be tired of us. And the first responder kept telling everyone how Tommy was born right here and when the EMTs came, one of them was there the night Tommy was born (my choirs of angels singing EMTs, remember?) It made my heart feel good because I trusted her. By this time, Tommy was totally awake and alert and trying to get off my lap and get into the EMTs' bags, as only Tommy could do. We almost felt silly calling then because he was this healthy, happy toddler, you know? Except that he gave us the scare of our lives. We decided to instead get him into the pediatrician first thing instead of transporting to the ER. (And my Lukey was so brave through all of this and sat on the couch and told everyone how Tommy was his little brother and how he was excited for Halloween and he told me later that he was a little scared but you wouldn't have even known.)

A few hours after they left, Shane and I remembered something that happened Sunday and realized that maybe he had a little seizure on Sunday. After talking to the doctor, he's pretty sure that both were seizures. And although my mama instinct tells me he's fine, every time he moves funny, my heart races and I keep thinking of his little closed up face in my arms.

I know this is disjointed, but I'm so tired. I was up every hour last night checking on Tommy, who slept just fine. Of course. And now I'm thinking ahead to tomorrow, when I have to keep Tommy up until midnight so that he's good and sleep deprived for an EEG (because he's had neither a fever nor vaccinations any time recently, we can't just brush it off as a febrile seizure) Thursday morning. And although I don't really want diagnoses or guesses at what's going on with him (seriously, I'm not even Googling this), I would like to know how on earth I might keep a baby awake until midnight, because APPARENTLY I can't give him caffeine. I know, right? I'm tired just thinking about it.

Right now? I am so tired that my eyes burn and my legs hurt and I would like a big hug. The kind where you can just put your head on someone's shoulder and not think for a minute.

69 comments:

Tristina said...

*offers shoulder*

And wine.

Tommy is in my thoughts and prayers.

InTheFastLane said...

I am praying for you guys. And, I am pretty sure that he will spend his life giving you heart attacks, that is what boys do to their mamas :)

MamaBear said...

You've been on my mind all day! I'll be praying!

Megan said...

Thoughts and prayers and lots of love.

simplicity said...

Wow. I am so sorry! Will be thinking/praying for you and HIM!

Lyndsay said...

***wishing my shoulder was closer***

That's so scary Erin, I will say a prayer for Tommy.

((HUGS))

Cameron said...

My shoulder is always here for you, and my thoughts and prayers are right there with you in NWI. They're zooming across the atmosphere rightthisveryminute. {{{so many hugs}}}

Rachel said...

Thinking of you guys. I can't even imagine!

And truly... how are you to keep him awake? You'd think they'd allow caffeine in this case ;) So maybe lots of candy is in store for him tomorrow.

Praying for you!

nora said...

Dear Erin,

My youngest HAD seizures and it is awful scary. We saw lots of neurologists who use lots of big words, but also had some great ideas. I am hoping you find great ideas and lots of peace. And wish for Tommy to be entirely a healthy little.

Anna-Catherine said...

Erin,

I am delurking to let you know that you, Tommy and your family are in my thoughts. I first found your blog through a link about Tommy's birth on another blog.

If the EEG and other tests come back negative, please have an EKG done of Tommy's heart rhythm. My brother and I have an irregular heart beat (Long QT syndrome) that manifest itself as seizures. I went undiagnosed for years because only the neurological test were being done on me.

Please feel free to email me if I can answer any questions.

jaime said...

Sending thoughts, prayers and a lot of virtual hugs to you.

Heather said...

Good thoughts & prayers to you all. What a scary experience. Waiting for answers is the hardest thing. I hope you don't have too long of a wait after the tests. Good luck with keeping him awake. I'm betting that will be tons harder on you than on him.

Kaycee said...

Oh Erin how scary!!! My Mama heart hurts for yours. I am so glad Tommy is okay right now and your whole family will be in my thoughts and prayers. You must be proud of Luke for being so brave too - that had to be scary for him.

As for keeping Tommy up until midnight (really? whoa) maybe try really low-key activities through the afternoon and evening? Like a LOT of TV watching? What a crazy thing to have to figure out how to do!

Many thoughts, many prayers, hoping things turn out okay.

Ethan, Zach, and Emma's Mom said...

{{{{HUG}}}} Prayers sent up for you!

Melissa said...

I'm so sorry you're going through this. I've had several EEGs, I called my mom and she said that they used to make sure I didn't play outside too long and they avoided all the normal bedtime routines......no bath, no reading until it was time for me to go to sleep. Good luck!

Praying for you and Tommy and sending big hugs to you.

Melissa said...

I'm so sorry you're going through this. I've had several EEGs, I called my mom and she said that they used to make sure I didn't play outside too long and they avoided all the normal bedtime routines......no bath, no reading until it was time for me to go to sleep. Good luck!

Praying for you and Tommy and sending big hugs to you.

Melissa said...

I'm so sorry you're going through this. I've had several EEGs, I called my mom and she said that they used to make sure I didn't play outside too long and they avoided all the normal bedtime routines......no bath, no reading until it was time for me to go to sleep. Good luck!

Praying for you and Tommy and sending big hugs to you.

Sara said...

{Hugs}

Thinking of you and your sweet boy!

Jade @ Tasting Grace said...

Wow. There are no words. Just hugs and prayers. Know they're being sent your family's way.

Adventures In Babywearing said...

I'm so sorry, and still trying to process it all myself. I'm glad you were able to write it out, I hope that has offered some release and relief.

Steph

Anonymous said...

I send hugs and love, and I apologize if my first inclination to help was to send you a message about research was insensitive. And thats not what you need. It may be what *I* do, but i forget everyone is not me (and yay for that!). You need hugs and a shoulder and oh how I wish I could lend you both as our nosy boys got to know one another.

You guys are all in my thoughts. I hold you in my heart. I wish for you everything you want and need.

Jenny

Erin said...

Oh my gosh....this breaks my heart...it hurts my heart. I am so sorry. I am praying.

Erin said...

Oh my gosh....this breaks my heart...it hurts my heart. I am so sorry. I am praying.

Jen said...

Oh Erin!! HUGS of the biggest variety...and lots and lots of prayers.

To Think is to Create said...

You know what I'm doing for you.

{BAM!}

(just did it again...)


Love you from the depths...

indighost said...

I'm thinking of you. I don't know if it would help to hear this but I've heard that seizures are surprisingly common (or at least, surprisingly not rare) among young toddlers. My friend's baby had a few, and his tests have turned up absolutely nothing abnormal and he is today fine. I hope the same for Tommy. *hugs*

Krista said...

Thinking of you and praying for you!

lauren. said...

i'm so glad that that first responder was there for you. i cried os hard when i read that - we have such a wonderful god. he never ceases to amaze.

tommy (& you, shane & luke) are in my prayers.

love.

Ashley said...

Your in our thoughts!

*Lissa* said...

So scary! Thinking of you all and hoping for the very best, girl! xo

Jen@Scrapingirl said...

OH my gosh!!!! My heart is racing, just reading that!! I am praying for you guys and for the docs, so they can give you the answers you need.

Elaine A. said...

Oh honey, I'm so sorry this happened. But I'm so glad there were people there that made you feel comfortable while you were going through it. Please keep us posted. Praying that Tommy is just fine. And wishing I could give you one of those hugs! xo

Mimi's Toes said...

My heart aches for you, sweet Erin. I am praying for Tommy and No more seizures. Sending my love and shoulders to you!

Jamie Lynn said...

Oh my goodness I couldn't imagine. Just thinking about it made me bawl. Hope everything comes back fine. Thoughts are with you and your family <3

ZDub said...

Love and light you and your family. So scary. HUGS all over the place.

Mommy Mo said...

How very scary but how very fortunate to have people who KNOW Tommy answer your call. Hoping and praying that it's nothing. HUGS.

Katie said...

Erin, we don't know each other but I follow your blog and you lighten my day often without even knowing it. So here's a big BIG HUG for you. Know that there are people out there you don't even know who are thinking about you and Tommy and praying for you all.

keli @ kidnapped by suburbia said...

my God, i can't even imagine. you are so strong.

SO STRONG.

praying so hard for you guys. a lot.

and two words -- pixie. stix.

hugging from afar, xo

Julie said...

Keli and I must be soul sisters or something because did I not just tell you pixie-sticks?? And Fun Dip.

You already know how much I love you and your family that it is silly to even write it!

HUGS!!!

Meghan said...

I wanted to comment to you as soon as I read this yesterday evening, but I didn't know what to say that hadn't already been said. Now I know all that *needs* to be said is this: I'm thinking of you all, wishing for the best, and here if you need me. I just wish I'd said it sooner. *BIG HUGS*

Momma Good said...

I hadn't decided if I should comment, but here goes. I just saw your note on twitter as well about Katie's comment. Again from someone you don't know. Prayers are being said for Tommy and you and the rest of your family. I hope your heart is held afloat by the love and prayers.

Maria Melee said...

Thinking of all of you. No one should have to carry this kind of pain and worry.

Sending love, mama.

Tasha Lehman said...

Praying for you. Hang in there! You are strong enough to handle this, I promise!

Tammy B said...

here's a shoulder. and some brownies. i have been in your place sista, and it's not such a good place to be. good luck keeping him up for the EEG, i finally put mine to bed around 11:30 because I couldn't stay up anymore! your family is in my prayers.

Jo @ Outta Jo, Onto You said...

FWIW, I had febrile seizures throughout my childhood, until I was 10 years old. Every time it happened, it scared the bejeesus out of my family, but I was ok in the end. Mine were not always preempted by a shot or a fever, either.

I hope that whatever is going on with li'l Tommy, you guys get to the bottom of it and fast. There's nothing scarier than a sick child.

Hugs from Brooklyn!

Helen said...

Thinking of all of you! He is too young to have given his Mama so many heart attacks. That is what the teenage years are for! :)

april said...

I've been thinking about you and Tommy all day. I'm here. Whatever you need. Let me know.

Much love to you.

designHER Momma said...

I would like to think of myself as a good prayer. Tommy has mine tonight.

kristin said...

i love you. and i wish i was there so that i could hug you and not let go. (unless it was to keep tommy awake for you). please keep my informed and let me know what you find out. love love you. *hugs*

monstergirlee said...

Praying for Tommy (and you too!) every chance we get.

swonderful said...

you're in my prayers, your whole family is. sending my love your way.

Bacardi Mama said...

I have a big hug and big shoulders just waiting for you. You and Tommy are in my prayers. XOXO!

pinkflipflops said...

Thinking about all of you!! Hang in there!

Martina said...

Oh Erin! I am so sorry you are going through this. But you are so strong- and what a blessing to have those same angels there with you. Prayers for strentgh and peace for you, Tommy and your family as you go through all the steps to figure everything out. And for wisdom for the doctors involved. Prayers, thoughts, hugs and shoulders coming your way.

Jennifer said...

Erin - Good luck! Please update when you find out what is going on with Tommy. He's in my thoughts.

Rhen @Yes, they are all mine said...

I am praying for you, your sweet little boy and your family. May God keep you all in His hands.

Katie at A List Maker's Life said...

Erin,
I am so very sorry that you and Tommy are going through this right now. Praying that you will have answers and peace for your sweet little love very soon. Wish we were in the same hospital where we could sit in the waiting room together for a long overdue hug.
Katie

Becky said...

Oh sweetheart. Thinking and praying for you all.
And giving you that hug.

Beth at I Should Be Folding Laundry said...

Coming here and commenting right now seems so dumb to me but I just need to, to let you know that I'm constantly praying. CONSTANTLY.

Heather said...

((((hugs))))))

Laurie Dodds said...

My girl, you, Shane & the boys are in my thoughts and heart. I have you wrapped in all the Nan energy I have. I have Tommy tucked up in my heart and I am bathing him in the most positive, loving energy. He is there with his other brothers, W & H. We will keep them all strong with our love.

Bobbi Janay said...

Lots of love, hugs, and if I was closer chocolate. I will be praying for your family.

Sarah Halstead said...

I am praying for Tommy, you and your whole family ! I hope they find the cause. So scary!

Becca @ Our Crazy Boys said...

Here is my big, big, GIANT hug for you.

Thinking about you :)

Kristen said...

Your family is in my thoughts and prayers Erin. I can't imagine how scary this must have been.

pendy said...

Add me to those praying that everything checks out fine and that Tommy will think three heart attacks is enough for you.

Sharon - Mom Generations said...

Prayers beyond anything you can imagine...

Heather of the EO said...

Oh lady, I'm so sorry. Not to make this about me, but Asher did something seizure-like the other night...I'm still not sure it wasn't a seizure. It was terrifying. He has brain issues, so I understand the fear and confusion and that panic...because they look so...not good when that's happening.

I'm sorry.

Praying that you will get answers and solutions....

Kaycee said...

I still can't imagine having to go through this. I still hate that you don't have answers. I still hope that the last one will be his last seizure. Ever.